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Data & Society Databite #41: Ifeoma Ajunwa on Genetic Coercion

The mythol­o­gy of genet­ic coer­cion is thoughts that genet­ic data, espe­cial­ly large‐scale genet­ic data­bas­es, have the abil­i­ty to pin­point cer­tain risk of dis­ease. They pro­vide agency to act to pre­vent such dis­ease, and it can be used to cre­ate accu­rate per­son­al­ized treat­ment for dis­ease, and it should also be entrust­ed with the author­i­ty to dic­tate the mod­i­fi­ca­tion of the genome for future gen­er­a­tions.

Jen Lowe at Deep Lab

Almost a year ago, I put my heart­beat online, and along with my heart­beat an account­ing of all the days I’ve lived, and the days I sta­tis­ti­cal­ly have yet to live, along with my aver­age heart­beat for each day. So I was play­ing with the idea of pri­va­cy. Here’s this very inti­mate mea­sure, in a way. But I’m not wor­ried about shar­ing it because there’s not much you can learn about me from my heart rate.

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